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Hello, my name is Amy

I am a massive advocate for Absence Seizure awareness and I set up this website after other charities dismissed the condition and consider it a "minor inconvenience" 

My Story

I was diagnosed with Absence Seizures in 2003 when one of my teachers continually noticed I would be "away with the fairies" randomly in 2002, a year later I'm at the neurologists breathing into his "Magic Tissue" which is how most children are diagnosed - Hyperventilation is the most common trigger of Absence Seizures and is the official method of diagnosis. 

Sadly 22 years later I still have around 60 of them a day. Academically I failed big time because none of the teachers cared, I was constantly dismissed as being lazy or inattentive as so many children with absence seizures are sadly labelled. 

I have had every medication available, every combo and even some guinea pig medication (Tester meds aka I'm desperate I will take anything!) Sadly I still suffer with them. 


After being hit by cars, screamed at by people for bumping into them and tripping over constantly I went to epilepsy charities to try and get some more awareness about what it is like living with them but sadly I was dismissed by them all so I decided to set up my own awareness site, awareness walks, videos, facebook page, etc. Anything to get the word out that:

Absence Seizures exist and they are NOT a Minor Inconvenience. 

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